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For Patients and Families

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Network 17 provides services to help ensure transplant and end stage renal disease (ESRD) patients are receiving the best care possible. We do this by:

  • Working with dialysis and transplant facilities to improve the quality of care
  • Investigating patient grievances
  • Providing patient and provider education
  • And more!

We encourage you and your family to learn more about ESRD and ways that you can become involved in your treatment by looking at topics on this website. Equally important, we urge you to talk to your care team (physicians, nurses, social workers, dietitians, and technicians) and get involved in the decision-making process so that you will find your own best approach to treatment.

About The Network Brochure  English  Spanish

ESRD and Health Education

You Can Live: Your Guide for Living with Kidney Failure

This booklet gives tips on  treating kidney failure, making treatments better, and  living a healthier lifestyle.



Why Am I Cold Brochure

This brochure addresses the reasons patients may feel cold during their treatment and some ways they can deal with that.



Vascular Access

Lifeline for a Lifetime

The ESRD National Coordinating Center (NCC) website provides information about vascular access management through a program called Lifeline for a Lifetime. 



Life Options Vascular Access Education in Multiple Languages

The Life Options website offers free print materials available, including booklets, newsletters, and fact sheets. This site contains vascular access education in multiple languages.



Healthy Living

The Little Book About Kidneys: A Guide for Children About Kidney Disease and Treatment

The Little Book About Kidneys by Victoria Hanson and illustrated by Jenny Tulip, will help you talk to young children about your kidneys and the treatments you may experience. It is intended to support you in explaining your kidney failure to children. 



SmokeFree.gov - Quit Smoking Today!

This website provides information and resources about how to stop smoking.



Grievance Process

Grievance Process

If you have a concern about the care being provided to you or family member in a dialysis clinic, you may call the Network at any time. However, you are encouraged to speak to the clinic manager, charge nurse, or social worker first. This resource will provide you with more information about the Network grievance process, including how to file a grievance.



Vaccinations

Vaccines for People on Dialysis

This flyer provides recommended immunizations for people on dialysis.



Myth Busters: Vaccinations

Fact or fiction? This handout, available in English and Spanish, dispels some of the myths and highlights the facts about the Pneumonia and Hepatitis B vaccinations.



Prescription Drug Coverage

University of the Pacific Thomas J. Long School of Pharmacy and Health Sciences Outreach

Each outreach event will also provide many other services that beneficiaries can take advantage of and have included: vaccinations, blood pressure testing, diabetes screening, cholesterol testing, bone density testing, and much more.



Medicare Part D

Learn about how to get Medicare Part D drug coverage, what drug plans cover, costs for Medicare drug coverage, how Medicare Part D works with other insurance, and the enrollment dates.



Going Back to Work or School

Working While Disabled - How We Can Help

Social Security pays disability benefits to you and certain members of your family if you have worked long enough and have a medical condition that has prevented you from working, or is expected to prevent you from working for at least 12 months, or end in death.



Working While Disabled - Spanish Version

Social Security pays disability benefits to you and certain members of your family if you have worked long enough and have a medical condition that has prevented you from working or is expected to prevent you from working for at least 12 months or end in in death. 



Treatment Options

Fixing Paco

Fixing Paco is a website dedicated to educating the public about the leading causes of kidney disease, how to prevent it, kidney transplant as a treatment option, the need for living organ donors, and the importance of proactive patient involvement in care.

There are two components to the website:

  • A web series that tells the "story of family, big decisions and second chances."



Dialysis Schedules: Tips for Patients and Staff

Scheduling issues are a common source of frustration for dialysis patients and staff. This document addresses what you can do to help keep your dialysis schedule running as on time as possible.



Patient Organizations

Online and Telephone Support Group Resources

This document provides a list of and links to online and telephonic resources that specialize in kidney disease. Many offer education, as well as the opportunity to connect with other end stage renal disease (ESRD) patients, family members, and/or caregivers through discussion forums and subscription-based email lists.



American Association of Kidney Patients

The American Association of Kidney Patients continually develops high quality, professionally written, edited and reviewed educational pieces covering every level of kidney disease.



End of Life Care

Planning Today for Tomorrow's Healthcare: A Guide for People with Chronic Kidney Disease

This brochure will provide details on how to have control over your healthcare in the event that you cannot speak for yourself.



Coalition for Supportive Care of Kidney Patients

The Coalition for Supportive Care of Kidney Patients brings together like-minded multi-disciplinary clinical professionals and lay people who care deeply about the quality of compassionate, supportive care for kidney patients.  The website includes education, helpful links, and resources.



Patient Newsletters

October 2018 Patient Newsletter

This October newsletter highlights the mind-body connection between mental health and diabetes, what to do when you have a concern, the annual open enrollment for Medicare Part D, and more.



August 2018 Patient Newsletter

This August newsletter highlights immunizations, the importance of Plan of Care meetings, transplant, and more.



Patient Rights and Responsibilities

Patient Responsibilities Poster - English

Do you know your responsibilities as a patient? This poster reviews important patient responsibilities for ESRD patients to know and understand.



Patient Responsibilities - Spanish

Do you know your responsibilities as a patient? This Spanish language poster reviews important patient responsibilities for ESRD patients to know and understand.



HSAG

ESRD Network 17 | 533 Airport Blvd., Suite 400, Burlingame, CA 94010 | 415.897.2400