Wednesday, April 18, 2018, 1:00 p.m. to 2:00 p.m. ET.
This web seminar uses recent work from the International Summit on Intellectual Disability and Dementia, which defined advanced dementia, proposed how palliative care services (including hospice) may be used and made recommendations for completing advanced directives and advance care planning prior to the extensive progression of dementia. Case examples will help illustrate the value of service integration efforts between intellectual disability and palliative care providers, specialized training for caregivers on end-of-life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.
Participants in this web seminar will be able to:
- Identify three ways in which palliative care may be helpful for people with intellectual and developmental disabilities (IDD) and dementia and their families.
- Understand at least four differences in the experience of end of life for people with IDD and dementia.
- Identify differences in the experience of advanced dementia for people with IDD and dementia as compared to thers with dementia.
- Understand three approaches to increasing participation of people with IDD and dementia in the development of their own advanced directives.
Mary Hogan is a member of the National Task Group (NTG) Steering Committee and was a contributing author to Aging and Down Syndrome: A Health and Well-Being Guidebook and its companion publication, Alzheimer’s Disease and Down Syndrome: A Practical Guidebook for Caregivers.
Philip McCallion is director and professor at Temple University’s School of Social Work, a consultant on IDD and dementia to the National Alzheimer’s and Dementia Resource Center and a member of the NTG Steering Committee.